3 weeks and counting

We have been here exactly 3 weeks now.  Where has the time gone yet time seems to stand still. Its so weird! I have become a pro at doing laundry using the same dinosaur washer and dryers my sorority house had 10 years ago. Costs 50 cents to do a load. Brings back many memories. Sharing one room with Preston has been an experience.....I am sure he misses his own room and the peace and quiet it brings to him at night. But I doubt it. He thinks this is pretty fun jumping on our bed and thumbing through my underware drawer. LOL I am totally over g-tube feeds with Pediasure.....nothing says FUN like the tubing getting disconnected 1/2 way thru the feed and the smell of vanilla pediasure permeating our whole room. Or the smell of liquid poop all over our sheets from a diaper leaking. We can't find P's hearing aid batteries to save our life so the poor kid is head bandless. He is loving it! :) Its just been one adventure after another and Tim and I have never laughed so hard in our lives. You should see what we look like doing his antibiotics at 5:30am with one eye open. We could have our own reality show I am sure! We just roll with each punch and we are making the best of it. Preston had his follow up appt at the hospital this morning with Infectious Disease. Tim took him while I stayed here and did laundry to remove pediasure out of his sheets. His dr's decided to extend his PICC meds 2 more days so he will have them up until stint removal rather than going on a new antibiotic 2 days prior to stint removal. So we are 8 days away from PICC line meds and PICC line being removed and stint removed. YAY! I leave for Dallas in 7 days so Tim will hold down the fort and stay the night at CCH with Mr. P. 10 days till I get to see my Reid. I can't wait to spend the weekend at my parents house with him and just relax. Nothing is more comforting than being HOME with my folks and to have one on one time with my little lovie. Can't wait to hear him say all of the new words he has picked up according to our family. And 14 days till Preston's bronch to find out how his airway and grafts look after all this time has passed. We are on the home stretch!!!! His stoma sight looks INCREDIBLE! My in-laws arrive in 4 days and they can't get here fast enough. We miss them so much and Preston will be so excited to see Grandpa and Grandma arrive. Hope everyone is having a wonderful Monday!

New Normal

I put this new picture of our family up on the blog because it was the first summer outing we did (Deanna Rose) and I remember that day SO WELL for many reasons. I knew we would not have many chances to do things as a family of four all summer. I knew the boys would not be able to spend a lot of time together. I also knew how HOT it gets and spending a whole day outside would be few and far between. Luckily, Tim and I have had GORGEOUS weather and spend most days outside as much as possible in between nap time and picc antibiotic dosing mid day. I told Tim today that I am starting to forget what its like having 2 kids and that we might need a training course on parenting twins when we get home. Preston is SO easy going and aside from his medical issues, he is a breeze! We have been blessed with a kiddo who sits on the bed for a full hour and a 1/2 each afternoon to receive his picc meds and then a full feeding via g-tube. He plays with his toys and watches a few thomas episodes. He is a total snuggle bug and he loves goofing around with us while we sit with him. Then he naps in his crib. Once these picc meds are over (8 days to go- yay!) we are going to feel so free! Its a total pain to have to stop what we are doing mid day to come back to our room to do an hour worth of meds and food. We would do the meds 'on the go' but they have to be administered in a sterile manner so you can't just give them anywhere. :( It could be worse so we are not complaining! Tim will have Preston for a week on his own in a week and it just so happens that the picc meds end the day before I leave so Tim is going to have it much easier which makes me feel much better!!! :) I have been informed they are going on a local brew tour so thank goodness those meds won't get in the way of that important outing! LOL :) 

Today we got up and out the door early to stroll the local farmers market called Fenway Market. It was very cool. My aunt sent us a paper clipping of 5 free things to do in Cincinnati and Fenway Market was one of them. We want to go back next weekend when my in-laws are in town and have breakfast there!  We also went last night for a late evening site seeing walk to Mt. Adams. It was also one of the 5 free things to do. We need FREE right now in our life! :-) VERY peaceful, gorgeous view of the city, a great walking trail around a gorgeous fountain. Got home later than usual but it was worth it. If you haven't noticed, we now call this place 'home.' The new normal of living here has set in 100%. Tim and I were joking that we feel like we live in a compound. LOL The gates around the RMH and all the security and SAME families we see day in and day out makes it feel that way. Speaking of gates, I just hate that the surrounding neighborhood is such a poor community. :( It is not safe to leave alone. We have been told ALOT to only head towards the hospital and don't go any other direction. Another reason I am VERY grateful Tim is with me on this journey. Most of the mom's never leave RMH. I would go CRAZY!!!! Even the farmers market neighborhood was questionable once you drove out of the parking lot and down the street. I saw a homeless man sleeping on a slide in a government housing playground with a little 4 year old girl next to him on a swing. :( Just broke my heart.  

Let's talk about broken hearts. I have been REALLY affected by a few of the families we have met here and their situations. If I ever feel down, I let myself have a pity party for about 5 min. and then I am over it after reminding myself how fortunate we are with our situation. We met a nice couple with an 8 year old son a few nights ago. Tim talked to the dad while the boys played on the playground. Their son has autism and had a tracy (we noticed a scar on his neck and assumed it was due to a trach). He had the same LTR surgery as Preston 3 times and each surgery failed. :( They lost the skin grafts each time for a different reason. They had these surgeries done elsewhere and finally came to Cincinnati and his 4th surgery was a success. The dad told Tim that we certainly picked the right place to be for this surgery. First off, YAY for confirming we are in the BEST place but I was HORRIFIED and SICKENED this family has been through what we are going thru 4 times. Side note: I am believing with all my might that his bronch results we receive on the 29th will show the grafts took and everything looks amazing! I am trusting that we did pick the right place for this surgery! One mom I met this morning in the laundry room has been here for 16 MONTHS! Yes, you read that correctly......16 months! Her 2 1/2 year old daughter is waiting for a bowel and liver transplant and they have 5 and 9 year old sons who split their school year up last year to attend school in Ohio to stay with their mom and sister. They live in Oklahoma and made the decision to move here this summer permanently. So she was doing laundry to pack for their move. MY HEART SANK ON SO MANY LEVELS FOR THIS FAMILY! Lastly, Tim and I were eating dinner tonight in the cafeteria and a super friendly couple asked about Preston's trach and as we shared details with them and our eagerness for decannulation they told us their daughter is 18 years old and will NEVER get her trach out or speak (LOTS of reasons that will leave you in tears so I will spare you the sad details). What do you say to that? Lots of prayers for these 3 wonderful families can certainly be said if you want to add them to your prayer list! 

I didn't intend for my post to be this long. This journey is full of so much and I have found that writing before bed to capture our day really helps me sleep at night. I want the boys to read these details years from now with my memories being fresh in the moment. Speaking of sleep, Preston is having ALOT of secretions and is needing suctioned 4-5 times each night. I have the super early wake up call at 5:30am to administer the picc meds so Tim takes the middle of the night shifts to suction. We have never been more grateful for Amy. She is one hell of a night nurse and she is the reason why I don't have bags under my eyes the size of silver dollars.......the sleep we get at home is no longer taken for granted EVER!!!! We can't wait for this stint to come out and his secretions to lessen. I think he will sleep better too instead of coughing so much! We were having 0-1 suctions per night before surgery and going days without suctioning during the day. Only 10 more days till the stint is removed! YAY! 

In closing, I hear it is HOT in KC and lots of water activities are keeping everyone cool. Apparently, my little Reidy is a total fishy in the water! I can't wait to hop off the plane in a few weeks, get my swim suit on, scoop him up and take him to the pool for the first time (for me anyway). Until then, I will settle for my phone calls I have with him where he smiles at the phone when I talk, waves at the phone, and then tells me the sounds of all the animals I name. Just hearing his voice is confirmation that he is still with me even if its thru a cell phone connection rather than in person. 

Video of Preston saying THANK YOU!

Another great day and I was able to get the video uploaded. Preston's signing for Thank you and blowing kisses is very similar but the mere fact that we are able to have him do both just for YOU is what matters! He is also signing Reid a ton and we know he misses him a lot! Hope everyone has a wonderful weekend!

1st video of P- THANK YOU!!!!

I am happy to report the 1st unclotting meds worked last night in the E.R.! Yay! We have a handle on the PICC line by now! Due to the dosing times of P's antibiotics, our mornings are much earlier than usual and evenings are much later than usual. So we are a bit more tired and the days are going to be longer but we will manage. Only 10 more days of these meds and then they are DONE! :) Today has been awesome! The weather is gorgeous (cool in the late afternoon even) and we enjoyed our first full day of freedom with zero dr appt's or plans of any kind. We went for an hour and 1/2 walk, received heart felt mail from friends, administered meds with zero complications, went to the store for a few necessities and got a much needed Starbucks fix (thanks Kreinbrings). I also spend an hour tonight in the cafeteria after dinner visiting with 2 other mom's I have gotten to know. Really filled my cup up! This is truly a special place to be during a stressful time. Everyone 'gets it' and there is no need to explain anything. One thing I know for sure is my boys will grow up volunteering and knowing the Ronald McDonald House VERY well. It has been a true saving grace for our whole family during this time! Tomorrow we get spoiled by visit #2 from Jessica and her family. Preston is feeling 100x better than her last visit so it will be a lot of fun having her here! I wanted to end tonight with a video of P I took today. I know Tim and I can say THANK YOU a million times for all the amazing support from YOU but we wanted Mr. P himself to say THANK YOU! In the end, this is all for him anyway and I know he would want to be the one to say it if he was old enough to truly understand! :) Enjoy! 
**And of course the video won't download :( ** Stay tuned for the video asap!!! 

Roller Coaster

We are all sitting in the E.R. waiting for Preston's clotted PICC line to un clot. I wish I was joking! And we just found out that it is a 2 hour wait to see if the medicine they flushed his line with worked. If not, another dose is given and another 2 hour wait it is. We are telling ourselves that this first dose of meds WILL work! I wish I had taken a pic of Tim's face when she told us that. We are starving and need showers. Preston has had NO nap. Our room back at RMH is a total disaster. What a day this has been. And we are homesick. We miss our families and Reid terribly! No Zoo for us today :(.......we plan to go on Monday. Today was spent setting up our room with all his meds (the box that was delivered was HUGE) so we spent lunch time making up 35 packets in ziploc baggies for each of his 35 doses while we are here. The home health nurse came out to help us give his first dose of antibiotics (it is a process and my ADD does not make it easy) and in between meds (that run 30 min each) his PICC line clotted. She did every trick possible to un clot it and then broke us the news that we needed to head to the E.R. We came totally unprepared b/c we naively thought we would be in and out. WHO GETS IN AND OUT OF ANY ER???? I don't know what we were thinking. Needless to say, this journey is a roller coaster! Here's to a better day tomorrow and a SHORT ER visit tonight! Ending on a high note- my little lovie at home had a GREAT day with his Mama Tolle and we are so grateful for the love and support that surrounds him while we can't be there ourselves! Thank you Cindy for the peace of mind you gave us today while life here is a 3 ring circus! 

Terrific Tuesday

First off, we are getting discharged tomorrow! WHOOO HOOO! The only reason we are here still is because P is getting 2 antibiotics. He has a PICC line so we are able to administer these on our own with the help of a home health nurse coming out to RMH for the first dose to make sure we do it correctly. Tomorrow is discharge so Tim and I took a 1 1/2 hour PICC line/meds/sterile/ information course. That was FUN! :) Good thing I have a neck so my head didn't spin and pop off. LOL His meds will be given at 6am, 2pm, and 10pm in addition to his pediasure g-tube feeds and a probiotic. We plan to go on LOTS of walks in between needing to be in our room to  give him his antibiotics. Good thing Tim and I have each other for all of this. I am SO grateful to not be alone like I see MANY mom's I see at RMH. Thank you God for a teacher's schedule! 

I might as well make the announcement sooner rather than later........Tim has a girlfriend! Her name is Keira and she is an adorable blonde who is 3 years old and she currently resides at RMH with her mom Shannon. LMAO Tim ate dinner the other night with her and her mom since all of the tables were full at the dining room at RMH. Ever since that dinner, she is constantly trying to find him and asks me when she see's me "Where is your boy?" LOL So apparently is now 'my boy' and not my husband! :) She is in a wheel chair and has spina bifida and the most precocious 3 year old I have ever met. She does popping wheelies with her wheelchair. Pretty funny! She loves looking at pictures of Preston on my cell phone and saw his 'stash' pic and asked for one so we shared the wealth of stickers with her. She now has her own stash! LOL We are really enjoying being at RMH. I truly feel God has led us here for MANY life lessons that we needed to learn. I have to believe this or I will go crazy wondering WHY we were the ones dealt these cards. It gives me peace! Some of these kids are VERY VERY ill and makes us grateful for Preston's minimal issues (even though it feels like alot to us at times).

We are very anxious for my in-laws to come visit for several days next week! It will be great to have family here again and more help with Preston. I see more Graeter's ice cream stops in our future. :) Last night Tim and I were tempted to go for an ice cream stop after Preston fell asleep but instead we went back to RMH together and put on running clothes and went for a long walk. The food at RMH can cause a 10lb weight gain just looking at it. LOL So we are trying to walk and eat healthy and it just so happens that it was the best evening we have had together all summer. It felt like a typical summer night  we used to have before kids were in our life. We would walk around 8pm when the sun was down but it was still hot enough to get a good sweat going. A great chance to catch up and talk about all sorts of things. Except this time we were in a different city with twins and one baby boy at home and one in the hospital fast asleep. Crazy! Tim and I realize we have a different situation than most couples who have a child inpatient. Our son actually likes his nurses and feels VERY at home in his hospital crib. Maybe this is because it has been apart of his life since birth with multiple surgeries under his belt. None the less, it gives us a bit more freedom to get out of the hospital to get a breath of fresh air TOGETHER. So much so that Tim and I slept at RMH together last night and got an awesome night sleep. Preston did awesome and was still asleep when we got here at 8am this morning. What a GIFT!!!!!!! Seriously! 
It is going to be hectic tomorrow getting him out of here and arranging his meds/feeds/home health so we are grateful for the wonderful night we had together. 

This is what we found on our way back from PICC line training today. I think it's safe to say P is one spoiled and loved little guy on the Airway floor.  He loves his nurses and the LOVE him! We feel blessed to be in such a loving and special place!

I am leaving in 12 days for Dallas for my annual work seminar and it is going to feel more like a mini vacation than 'work'. I am counting down the days to see some of my closest girlfriends and celebrate the phenominal year my MK Unit had! I am one proud leader of my AMAZING consultants!!!! Its been a year of excitement and blessings! I am looking forward to lots of prizes, recognition, fun, and the chance to share Preston's story! I can't wait! I was scheduled to fly back from Dallas to Cincinnati (where Tim and P would pick me up) but after skyping with Reid and the heartache that caused, Tim said I need to fly to KC instead and be with him for a long weekend. Thanks to some VERY VERY special friends for helping arrange this change in schedule and book an extra one way ticket from KC to Cincinnati, I will get to be with my other lovie for 3 whole days after my trip to Dallas. Then I will go back to Cincinnati to be with Tim and P right before Preston has his bronch in the O.R. I am OVER THE MOON and have a new sense of energy now that my flights are changed and new one is booked.  I might just sleep in Reid's crib like I have done with Preston!! LOL LOL Just kidding!!! 

Tim and I want to give a HUGE shout out to many friends who have sent packages and cards. They keep coming and we are speechless. I have a collectors box for Preston with all the cards, notes, and gifts. He is one LOVED little boy! And we are so loved by YOU! The donation website has left us in tears (literally). THANK YOU from the bottom of our hearts. We don't feel deserving of this generosity and kindness and support. We are still getting mail and pkg's at the Hampton Inn and many of you have asked for the address to RMH so here it is: 350 Erkenbrecher Ave Room50 P.Walker Cincinnati OH 45229 

Preston has a new favorite puppy in his life.......Mr Puppy Pillow Pet thanks to the Hisles who are our dear friends! What a bright spot in our overwhelming day! The package of goodies were perfect!!! 

Lastly, after much thought and discussion, Tim is officially registered to go back to school in the Fall to receive his Education Specialist Degree to become a Principal. He will graduate from MU with this degree and here is an appropriate pic with this news. Preston thinks he is pretty cool with Tim's hat! It excites me knowing we will celebrate this future accomplishment of Tim's with Preston being trach free! Something to look forward to! :)

Love these 2 boys more than anything (and my other little MU fan back home of course too!)

Wish us luck as we discharge tomorrow with a GREAT rest of the week ahead of us! Hope you all do the same!!! 

Update: 2 weeks down and 4 to go!

Update 7-8-13 After the Dr rounded on P this morning, we found out we will be here all week and possibly next week too. They want the antibiotics to all run their course and make sure his neck his healing the way it should be. Back to hospital food :( Looks like the salad bar will be my bff again. We will be taking turns making a trip to RMH for dinners hopefully. As much as this stinks we are glad Preston is in the best place possible and we caught this super early!! We are settled in for the long haul watching an oldie but goodie right now......The Land Before Time (Thanks Sean for sending all the movies for P). Reid is at my sister's house playing trains with his cousins and I already got 2 pics on my cell of him with big smiles. Makes me so happy knowing he is having a fun day at Auntie and Uncle's house! :)

We have been here for 2 weeks now and it sure doesn't feel that long. We are 1/3 of the way to being HOME. Preston is doing MUCH better! His meds are working great and he is feeling so much better. He has decided he loves pillows so he now sleeps with a full size pillow and thinks he is a pretty big stud. He looks like he is 5 when he is laying on it watching a show! :/ Still has very little energy and walked a few steps today but that is about all. He is on 3 diff types of antibiotics due to his cultures showing bacteria growth. He has special dressing with silver in it for his stoma and his neck looks so much better already. I have no idea how long we will be inpatient but we are in no hurry for discharge to ensure P's neck heals 100% and his dr's feel his meds are working properly. We enjoyed a nice quiet weekend in the hospital. I dread Monday's because it is so noisy but we are eager to see P's dr and consult with him about everything.

We skyped for the first time today with my inlaws and Reid. We have been so busy and overwhelmed since we got here and today was the first 'down' day we have had just hanging in P's room so we decided to give it a try. Well, that was the hardest thing I have ever done in my life. Buckets of tears on our end. :( Reid was confused and then excited when he saw all 3 of us talking to him. He and Preston were reaching for each other and signing each others names. Reid blew kisses and I lost it. I just see how big he has gotten (full mouth of teeth and all) and he didn't understand when we said goodbye. He started to cry a little bit and I just couldn't help but sob. Poor Tim......he didn't know what to say but he has been so supportive. I know Reid will never remember any of this but it is still so very hard. Tim and I made the tough decision a few days ago to not have my in-laws bring Reid with them in 2 weeks when they come to visit. We have a list of reasons and they all make perfect sense in our head. Our hearts are aching to see him but the trip would be a mess if he came! So, we are forging ahead to a new week and trying to stay positive. We are looking forward to what this week holds for all of us. I would give anything to be home and celebrate my sweet nephews b-day with my family. I hate missing milestones like that while we are gone. It sure makes us appreciate the times we ARE there and all together! Wishing everyone a wonderful week!!!!

A taste of freedom

We were out of the hospital long enough to get a taste of freedom but unfortunately we are back in the hospital. P was readmitted to the Complex Airway floor yesterday afternoon. After the worst night we have ever had with Preston on the 4th of July, we woke up and noticed some blood staining on P's dressing under his trache so we decided to call ent and they asked us to come in to clinic so they could take a look at him. It was at that moment i was SO GLAD we decided to stay right here for the summer. There is no greater piece of mind than being a walk away (literally) from RMH to CCH. Plus we have appt's with nutrition to weigh him and evaluate his feeds. He has been super fussy and very lethargic. We knew something wasn't right. They decided to admit him right away. His stoma sight looks worse and is the size of a quarter and its pooling with secretions. They swabbed him for a culture due to possible infection. :( The wound team is now rounding on him as well and he has a new dressing which will kill bacteria and help his skin heal.  Our favorite fellow is overseeing him and glad he is back here. Jessica and her family were here for lunch yesterday and it was wonderful having pizza and catching up. They brought us some goodies and my favorite scented hand sanitizer from B&BWorks. Sad that I get SO EXCITED over hand sanitizer! LOL Then Jess actually headed to clinic with me so she could see his stoma and what we were dealing with. What perfect timing!!! As we were walking to CCH for the appt, it felt just like we were at home headed to the dr but just in a different city. I find so much comfort in her presence because she is apart of our day to day life and knows EVERYTHING about P. Tim had fun staying at RMH with her kids, mom, and my folks and playing in the HUGE game room! All the fun was over once we headed to admissions but I have learned to never take the fun times for granted. Especially now that I am sitting with my mom in a dark hospital room with my sleeping little man who just received PICC line #2 this morning. I can live the rest of my life never going thru that again with him but I am so glad he has it in and we don't have to mess with IV's. Laundry is going (fun fun) and my dad took Tim for a Starbucks run. Just another day in paradise! :) Reid is having a great weekend with Grandma and Grandpa Walker which makes me feel so good!  They go above and beyond to make sure his is happy, fed, loved, and burning off all his energy! I am so blessed to have them! Reid gets to spend Monday, Tuesday, and Thursday with my sister and his cousins and favorite doggie Maggie and then Wednesday will be spent with his Godmother, Mama Tolle, so he is in for a VERY FUN week! :) Sadly, my folks leave today and it will be hard to say good-bye. They have been here for the most hectic week and I just love their support, empathy, and positivity! We have also had some great laughs which we need! :) Here's to a successful weekend of recovery at CCH for P and a huge shout out to my FAVORITE NEPHEW Will! HAPPY 5th BIRTHDAY on Monday buddy! Aunt Lou Lou loves you SO MUCH and I would give anything to be there for your celebration and give you a big hug and kiss! I miss you!!!!

Happy 4th and Happy DISCHARGE!!!!!

The last 48 hours have been INSANE. Not a moment to breathe. I haven't been on my computer or cell phone at all to check email, texts or facebook. Having my parents here has been more than wonderful. I don't want them to leave. :( They are here till Saturday thank goodness. They came at the perfect time as we are being discharged today!!! We also will be moving in to RMH soon! YIPEE! What a great day! To say we are overwhelmed is an understatement. A few things that have been unexpected will make for our transition from hospital to RMH a little more complicated. Preston is not eating much at all. A few bites of yogurt here and there and that is all. :( He is staying on bolus feeds till the stint is removed in 19 days (i am not counting or anything). He is also going back on humidified air at night with a trach shield.....haven't done that in over a year. Apria came and brought us his feeding pump and machine for humidified air. We should be getting his pediasure and more feed bags today. None of this is what we expected but we are just glad he is doing GREAT and back to his smiley and silly self. My parents are helping us move, set up his supplies, and transition to this 'new normal' as best as possible. Tomorrow is a BIG DAY for Preston (and for us). Again, it just so happens that Preston's day nurse, Jessica, has family close by and she vacations here every summer so she will be here tomorrow morning for a visit. I can't even believe we get to see her. She misses Preston SO MUCH and I know he is going to be SO EXCITED to see her too! I can't wait to see her.....I miss her tons! We have LOTS to catch up on! :) I hope everyone has a wonderful holiday today! It is raining here and expected to rain all afternoon and evening so i am not sure we will catch any fireworks. I am sure Reid is having a wonderful day with Grandma and Grandpa Walker! More to come once we are settled! Here are some funny pictures of Preston.......he is SO ready to bust out of here!!!!

Snoozing and snuggling with Grandma

Get me out of here!!!!!!!!

I taught him to say 'CHEEEEEESE'

Reading books before bedtime last night

THANK YOU will never be enough!

Today we received news from our friends (and sorority sister) Brian and Nancy Inwood about a donation website they set up to help us out. This is beyond a blessing to us and totally unexpected. The cost has been overwhelming and we have only been here a week. :( Thank you will never be enough!!!!!!!!  http://www.donationto.com/Team-Preston-Walker

A new week bring GREAT things!

Today marks a week we have been in Cincinnati! It has been a GREAT day! It started with a much needed sponge bath for Preston. A new breathing treatment that is helping with managing his secretions. Smiles first thing this morning. I haven't seen a 'Preston smile' in a week....gosh it feels good to see my little man start acting like his old self. I can tell a significant difference in how he feels today compared to the last few days! We had speech come and work with him on eating. He took a few bites of food so that is a start. Not much napping today so he is crashed out for the night. He played with toys in his crib. His favorite is a NEW stuffed animal doggie (my boys are in love with doggies...and NO we are not getting one) from Momma and Papa Tolle (boys godparents). They also sent the cutest pj's I am dying for P to wear tomorrow! We received 6 gifts in the mail today at the hotel so that was a bright spot in our afternoon (which seemed to drag a bit today). Talk about feeling LOVED!! Being this far away and worrying every second about P, it sure was fun to have some goodies arrive and take our minds off why we are here. We read some new books the Bohle's sent and have some fun new coloring toys for tomorrow. Tim and I thoroughly enjoyed home baked goods from my bff. Who doesn't love banana choc chip bread and magic bars? I could name a whole list of goodies sent from her.....she is the ultimate Betty Crocker! :) We also got these hilarious mustache stickers in the mail from one of our best friends from college! We put one on Preston and he was not a fan. This pic is too funny to not share! 

My folks arrive tomorrow! Hooray! I can hardly wait to see them! My sister made a new recipe of peanut butter choc chip cookies from a health food website. I am anxious to try them since they are on the healthier side. THANKS SIS!!!!! It also just so happens (as my friend Vicki says...its not a coincidence....its a Godincidence) that our night nurse, Amy, has family in the area and is on vacation here so she is making a stop to see us tomorrow! She misses Preston SO much and we miss her SO much! She will get to have some alone time to snuggle P and give me and Tim the chance to go out to dinner with my folks. WHAT A GIFT and what are the chances she has family here!!!!! We realize how special this is under these circumstances. Preston is going to be SO EXCITED to see her and also have Grandpa and Grandma in town! The best double dose of medicine for sure!! :) I called RMH again today and still no rooms available! Will try back tomorrow! This is such a busy time with airway surgeries due to the season so we knew it would be pretty booked. Just hoped it wouldn't take this long.   I am ending this post with a great pic of my 2 boys from today. They were watching.......take a guess......THOMAS!!! LOL I don't know how I would survive this journey without Tim......he is such an amazing father and husband. Here's to another great day tomorrow!