SO many firsts in the Walker household these past few weeks. We experienced our first church service without the boys in tow. They went to sunday school. That felt weird leaving P and I had to remind myself that he is just fine :) Hard to let go at first. He was a happy camper playing and didn't care that we left. That helped! Now we are no longer feeling weird and we are cherishing the FREEDOM. Went to a gala event and had Tim's folks and Auntie Kim stay with the boys. TOTALLY AWESOME we didn't have to miss out on such an amazing night b/c we weren't able to have a night nurse. Preston got to spend the night at my parents house for the 1st time. Its still hard for us to wrap our brains around the fact that he is HEALED. Totally 100% healed and able to do ALL things he should be doing at his age. Its a TOTAL gift. We are thankful for this new lease on life. Bath time is a blast. Still cautious until his neck is closed for good. We still rely on the video monitor a lot but let me tell you, brother bear has found his voice. He is a screamer. LOL Yikes! LOVES to hear himself jibber jabber and make noise! We love it. He is LOVING to get HIS turn finally at many things! First speech appt with Kay for her to guide us in developing words was wonderful. We have a bit of a road ahead with speech but I truly believe words will start to form and his language will explode once he is in school with other kids and they work with him daily. First trip to the dr to get flu shots and SHOW OFF HIS NAKED NECK. The nurse who always sees us had big tears when she saw P. She had no idea he was decannulated. His doctors were SO excited to see him! His proud smile and pointing to his neck and signing 'all gone' to them was priceless. Now we need to see his KU Med nurses to make the decannulation come full circle.
Now for a reality check I wasn't ready for. I knew it was coming. I thought I was prepared……not as much as I had hoped. First full week without Jessica everyday 7-4. Man was I spoiled! We still talked every day or in the evening LOL I am finding new common ground with parenting the boys on my own most of the week. Its SO rewarding but SO exhausting. I am just glad school is around the corner to help burn off their energy.
|Bath time at Grandma and Grandpa's|
|Night out at the Hope Gala|
|Off to the Zoo (having no suction bag in tow was AWESOME!!!|
|In the car off to Grandma and Grandpa's for his first overnight. He was SO excited!|
|GO ROYALS! Thanks Auntie Kim for the stylin' shirts|