|Preston was READY to come home! Yay! Secretly, I was
terrified but I put on a good front b/c I knew Tim was nervous too!
There was a stipulation in order to bring him home......KU required we
'room in' for a weekend to solely care for Preston to ensure we were
ready to bring him home. That required us to bring all of our home
medical equipment (machines and all) to the hospital, set it up, and
make sure we knew how to work everything. Even though we were receiving
nursing care at home, there was going to be a time that a nurse got
sick, overslept, stuck in traffic, snowed in, etc (and all of these
happened sooner or later) and we needed to make sure we knew EVERYTHING
about his care plan and didn't rely on the nurses. It was intimidating
and tiring but so glad we did it!|
Then the hard part came.....having to say good-bye to Preston's nurses who became family to us!
The one thing I LOVE about KU's NICU is the 'primary care' nursing each baby receives. Nurses can sign up to be a babies 'primary' so when they work, they always have that same baby. Preston had 2 special primaries.....his fabulous day nurse, Liz, and his fabulous night nurse, Alex, and both of these ladies are a HUGE part of Preston's life (and our families life) still. We have kept in touch and they come over on a regular basis, celebrated Preston's 1st b-day at his party with us, and are dear friends of mine now too! :) DOUBLE BONUS! If it weren't for them, Tim and I would have never made it through our journey at KU in one piece! They were a shoulder to cry on, a smile and hug when we needed it most, and 110% total piece of mind that when we couldn't be there with Preston as much as wanted to be, he was in the BEST OF THE BEST hands day and night. We called and talked to them around the clock to get updates and I grew to love these AMAZING nurses so much! It was even hard to say good-bye even though we were excited to bring Preston home. I saw them every day for over a month and it was my 'normal' routine to head to the hospital and get updates from them etc. Preston was such a little social butterfly in the NICU once he was much stronger and healthier. Liz would tote him everywhere with her while running doing other things in the NICU and he would smile and coo at everyone! They all just loved him. Preston came home with us on Feb
Then we had a set back and Preston wound up back in the NICU for a short period to be weaned off a drug that was causing him some withdraw issues.
So we say Good-bye again........this time to BOTH nurses!
And now the real adventure begins at HOME!