Sunday, February 10, 2013

KU and The Big Day!

Preston tolerated the transport to KU beautifully and January 10th was our day to gear up for Preston's surgery which was the following day. We decided to take Reid with us to KU and have some family time. Boy am I glad we did and were able to take some great shots of the boys together.......it was almost as if Reid knew something was going to happen and wanted to protect his brother. What a memorable day for us!

'Be still my heart'


January 11th was the BIG DAY! We anticipated this 'nose stint and scope' procedure to give us many unanswered questions. Here we are pre-op minutes before surgery.


We brought Reid with us (had we known the events that were to follow, we would have left him at home. But we anticipated this to be a HAPPY day filled with great news!

And then the unthinkable happened.................Preston received his emergent tracheostomy.

Here is my sweet little miracle the following day with his trache and on the ventilator. He was so fragile but such a fighter. I don't share this to scare anyone. It is a testament to how far he has come and how he is THRIVING today beyond what we ever hoped for! Looking at these pictures now makes me realize how critical he was but at the time I really had no clue. I didn't even know what a trache was or how it would affect his future. Probably a good thing at the time! So grateful for God's grace and mercy on his little life!



Time felt like it was standing still but once he came out of sedation he started to improve quicker than we anticipated. Here is P opening his eyes and interacting with us! What a great sight to see!



And I can't end this post without a very current picture of Preston (who looked thrilled in this pic LOL) and his plastic surgeon, Dr Brian Andrews, who SAVED HIS LIFE that day and placed the trache! He will always have a special place in our hearts! I can't wait for Preston to actually 'know' him and thank him for what he did when he is old enough to understand!












Sleep study complete!

April 28th feels longer than 4 months ago when I last posted an update. I promised myself to not think about returning to Cincy for the slee...